Running for BentheCarlijn Spijkers
( Hardlopen 8 km By Night (zaterdagavond), deelnamepakket (vanaf 14 jaar) | Lid van team: Stappen voor Benthe )
In the spring of 2020, my cousin Charlotte and her husband Johan received the news no parent should receive, namely that their then almost-four-year-old daughter has a serious illness, San Filippo Syndrome. This is a rare genetic metabolism disorder, that is destroying her brain, causing her to decline and pass away prematurely. I will be running the Dam-tot-Damloop to raise awareness and contribute to further research. Please help me support Benthe and all other kids diagnosed with a metabolic disease. Your support means the world to our family, especially to Benthe, her parents, and her siblings Jonas, Jasper, Emily, and Tobias.